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Why Is Lyme So Difficult To Treat?

May 29, 2017

Why is Lyme disease so difficult to treat? Why can doctors prescribe years worth of antibiotics for acne but not for a bacterial infection of Borrelia burgdorferi (Lyme bacteria)? Lyme bacteria can be treated within the first six weeks of a tick bite, but what about the other bacterial and parasitic infections ticks carry? If easily treated, why are so many people denied immediate care, moving on to chronic, debilitating stages of the disease?

There are adamant deniers of chronic Lyme. A story I like to relay involves a Lyme specialist and her most aggressive critic. Both highly educated and recognized medical physicians, my doctor tested for and treated chronic Lyme. The other physician spent much energy denying the existence of Lyme and smearing her as a “quack.” Then one day his son became ill. No testing could point to what was wrong. No treatment was working. His son grew dangerously worse. In the end, it was determined his son had Lyme. And who was the first person this man took his child to? Yep, my Lyme specialist. And she was able to help. After a hefty helping of humble pie was served, the once critical physician became a great admirer of my Lyme specialist.

Until it happens to you or your child, the Lyme pandemic may seem unlikely or far-fetched. But Lyme disease can be debilitating and has a history of ruining lives. Although there is no one cure or protocol that works for every case, people can find help. Unfortunately it takes lots of research, investigation, trial and error, patience, and money to get well. This article highlights the reasons Lyme is difficult to diagnose and treat, why treatment in mainstream medicine is often denied, and what people can do to seek help.

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Treatment

Why You May Not Want to Get a Lyme Test

May 4, 2017

Getting tested for Lyme disease is not as simple as visiting your family physician and then taking a blood draw requisition form to the local lab. Unfortunately the power of and confidence in doctors has been stripped away, preventing them from making a clinical diagnosis. Even when a physician has studied Lyme and researched treatments, the College of Physicians and Surgeons insists a patient test positive on bloodwork before allowing the knowledgable and well-versed doctor to treat.  They are to use an inaccurate two-tiered blood test system to determine when patients have Lyme.  Rarely is the test accurate and therefore rarely can physicians provide a diagnosis and treatment plan. There are a few reasons why it is difficult to determine a Lyme diagnosis through testing. If you suspect Lyme disease and tested negative on a Lyme test, you may want to continue reading. A negative result does not mean you are free of Lyme. Too many people say, “I was tested for Lyme, it was negative. I was diagnosed with Lupus or MS.” Lyme is the great imitator, and sadly, many people are misdiagnosed with other diseases when they have bacterial infections like Borrelia burgdorferi (Lyme bacteria) causing the symptoms. So what is up with the testing? What can you do to rule out Lyme or determine if you suffer from tick-bourne infections? How should you get tested? Continue Reading…

Coping

Survival Techniques

April 24, 2017

I spend time in person and online with people who have serious, ongoing illnesses who I greatly admire. From their attitudes and experiences, and my own struggles, a few survival techniques have become evident. Putting on a fight face, becoming a researcher, focusing on one moment at a time, and having a strong faith life seem to be some commonalities. I invite any readers to comment with their coping techniques and means of gaining ground. The more we connect and share, the less isolated and scared we will feel. There is power in information and connecting.

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Coping

When I Get Better…No more waiting for a good day

April 6, 2017

“When I get better….” I used to catch myself starting with this phrase a couple years ago. Too sick to work fulltime, too weak to go to the gym, too much brain fog to visit, too many medical appointments to organize, too many pain attacks to attempt past hobbies, too little money, too little energy…. I let the extremes of the illness and stressors cloud my judgement. I kept thinking the elusive “someday” would come soon and with it 100% energy and wellness. I would not do anything but take pills and inject IVs while saying, “When I get better I am going to hike through Scotland. When I get better I am going to run a 5km race. When I get better I am going to teach fulltime. When I get better I will rejoin the band. When I get better I will get my Masters.”

Caught in the trap of “When I get better” can lead to very unpleasant days. Thankfully, early on in my illness I started watching Joyce Meyer. The morning show title was perfect, and absolutely needed, a message in itself: “Enjoying Everyday Life.” Hmmmmm…. can I enjoy this painful, exhausting, everyday life? Is there joy and creativity and inspiration in the average day? With a change in perspective and attitude my everyday does run over with joy. Yes, I can enjoy everyday living. No more “When I get better…” Instead of dwelling on all that is lost and all I am incapable of I find new insight, new hobbies, and even new appreciation for my surroundings. Here are four steps that led me to abundant living and enjoying my everyday life.

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