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How Do I Know If It Is Lyme?

December 13, 2017

How Do I Know If I Have Lyme?

(Or: What if it is not arthritis, MS, interstitial cystitis?)

Most likely it is Lyme. If you are thinking about a possible Lyme diagnosis it probably is. And if you have been diagnosed with Fibromyalgia, rheumatoid arthritis, MS, or interstitial cystitis there’s a chance that the Lyme bacteria is causing it. Lots of serious, chronic diseases start because of a virus or bacteria. If your illness is caused by a Borrelia burgdorferi strain, then your treatments will only be Band-Aids for symptoms.  If you get tested and narrow the cause down to Lyme, then treating Lyme will get to the root of the problem and begin the healing process.

Many people in my town are being diagnosed with Lyme disease after years of feeling unwell and “mysterious” migrating symptoms. It is an epidemic and therefore makes sense that many people have Lyme, whether they know it or not.

In children, Lyme looks a little different. Sadly Lyme is congenital, and mothers can pass it on to babies if they do not have treatment during pregnancy. It starts out slowly and if untested and untreated, the child will just grow increasingly ill with more symptoms. It usually begins with headaches, bone pain (mistaken sometimes for growing pains), constant sore throat and ear infections, asthma, digestive issues, and/or ADD and anxiety. Some children are developmentally delayed, while others have more physical pain and low immunity.

Here’s how it started for me:

First onset symptoms: A “weird” flu or unexplained “virus” a few months, asthma, chemical sensitivities, fatigue, feeling ‘rundown’, sore throats, annual pneumonia


Chronic Lyme disease symptoms: Extreme fatigue, insomnia, pain, poor circulation, brain fog, tinnitus, heart palpitations, heart block, heart murmur, low BP, difficulty breathing/shortness of breath, chronic cough, stiff joints, heightened anxiety, difficulty remembering common words.


Diagnosis before Lyme disease: 


Working too hard; anxiety; IBS


Treatment does not always mean hundreds of thousands of dollars at a special clinic. There are means to managing the disease at home and with the help of various practitioners. It does require patience and research. Some excellent books to start with are:

Dr. Horowitz’s Why Can’t I Get Better?  His symptom checklist is thorough.

Stephen Buhner’s books on Lyme and Coinfections

Dr. William Rawls Suffered Long Enough and Unlocking Lyme


Why Is Lyme So Difficult To Treat?

May 29, 2017

Why is Lyme disease so difficult to treat? Why can doctors prescribe years worth of antibiotics for acne but not for a bacterial infection of Borrelia burgdorferi (Lyme bacteria)? Lyme bacteria can be treated within the first six weeks of a tick bite, but what about the other bacterial and parasitic infections ticks carry? If easily treated, why are so many people denied immediate care, moving on to chronic, debilitating stages of the disease?

There are adamant deniers of chronic Lyme. A story I like to relay involves a Lyme specialist and her most aggressive critic. Both highly educated and recognized medical physicians, my doctor tested for and treated chronic Lyme. The other physician spent much energy denying the existence of Lyme and smearing her as a “quack.” Then one day his son became ill. No testing could point to what was wrong. No treatment was working. His son grew dangerously worse. In the end, it was determined his son had Lyme. And who was the first person this man took his child to? Yep, my Lyme specialist. And she was able to help. After a hefty helping of humble pie was served, the once critical physician became a great admirer of my Lyme specialist.

Until it happens to you or your child, the Lyme pandemic may seem unlikely or far-fetched. But Lyme disease can be debilitating and has a history of ruining lives. Although there is no one cure or protocol that works for every case, people can find help. Unfortunately it takes lots of research, investigation, trial and error, patience, and money to get well. This article highlights the reasons Lyme is difficult to diagnose and treat, why treatment in mainstream medicine is often denied, and what people can do to seek help.

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War of Attrition

March 16, 2017

If you have NOT been touched by a chronic illness, please take a moment to reflect on all that is going on around you. I have only been “out of the loop” for a few years; my tour of duty is minimal compared to most with this disease, but it did give me a taste of isolation and how inaccessible the world still remains for the disabled. At any moment one of us is next to you in a store, restaurant, or clinic. We are tired, sore, and likely panicking. Perhaps we are standing in a long line-up, reeling from POTs and deciding whether passing out is the best option or to simply go home and try again the next day. Everything feels like an assault yet we appear “normal.”

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My Treatments

February 6, 2017

Below is a list of the combinations of pharmaceuticals and herbals I have taken, continue to take, or researched. I am not suggesting a cure. Chronic Lyme is just that. But I’ve found ways to reduce the infections and symptoms to the point I have good days consistently.

Scroll through to find the infections you are dealing with (I cover babesia, bartonella, Lyme, and others).

I AM NOT A DOCTOR.  I RESEARCH FOR FUN. I KEEP TRACK OF MEDICAL JOURNALS AND ADVANCEMENTS TO STAY ORGANIZED AND IN CHARGE OF MY HEALTH. DO NOT USE MY GUIDELINES AS THE GOSPEL.  I just want to provide some guidance for my Lymie friends who are stuck and do not know what to try next.  I suggest reading the works of Dr. Horowitz, Dr. Burrascano, Dr. Cameron, and Stephen Buhner.

Text in purple are the treatments I had the most success with.

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